Purse Designed by Student With Autism Becomes International Sensation

Dinosaur Purse1 copyEven if you don’t care about the world of fashion or keep a scorecard on the various diplomats who visit the White House, chances are you’ll still be interested in this story. This past week, when the Prime Minister of Singapore visited President Obama, his wife Lee Ho Ching was photographed carrying a simple and fun dinosaur clutch bag designed not by a famous designer, but by a 20-year-old man with autism.

It turns out that Mrs. Lee is an advisor to the Pathlight School, the first autism-focused school in Singapore. The school has an Artist Development Programme (ADP) and the items designed by ADP students are featured at its Art Faculty, to “promote the special talents of people with autism and related challenges.” Mrs. Lee brought three purses designed by ADP students to the U.S. for her visit, deciding at the last minute to use the blue dinosaur bag designed by Sheng Jie.

While Sheng Jie’s parents were amazed that their son’s design made it into the international spotlight, his father said that his son doesn’t realize the impact that his design made. He explained: “He is just happy when we tell him someone likes what he’s made.”

Sheng Jie makes dinosaur designs right from his head, without relying on any pictures or photos. His parents said he became obsessed with dinosaurs after watching the Disney movie “Dinosaur” when he was just 3 years old. It was the first movie he’d ever sat still for, and he was soon sculpting clay dinosaurs. He went on to create his own dinosaur encyclopedia, featuring his artwork as well as descriptions of each dinosaur. Although Sheng Jie doesn’t talk much, he loves to name all of the dinosaurs from A to Z.

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In 2011, after teachers noticed his artistic abilities, Sheng Jie became one of the first students in Pathlight’s Artist Development Programme. Professional artists work with the ADP students to help them develop their talent. When possible, the work of the students is turned into merchandise to benefit both the program and the students, who earn royalties on every sale. Sheng Jie’s dinosaur drawings are featured on pouches such as the one that Mrs. Lee carried, as well as notebooks and notecards. The specific pouch showcased by Mrs. Lee sold out within 24 hours.

Linda Kho, Pathlight’s principal, told the BBC, “We were pleasantly surprised and honoured that she chose to bring this bag on her official visit. It gave such a great mileage for the artist on our Artist Development Programme (ADP).”

Mrs. Lee also gifted Mrs. Obama a set of mugs and cups featuring the artwork of another ADP student. We know it’s unlikely, but we think it would be great if they became a permanent White House installation!

Finding the Laughter in Autism

aspiecomic1You’ve likely heard the expression, “Laughter is the best medicine,” more times than you can count. When it comes to his performances, 20-year-old Canadian Michael McCreary is counting on the fact that comedy really does make a lot of things better.

Michael is known as the “Aspie Comic,” and he’s been doing stand-up comedy routines since he was 14. In a profession that relies on a quick wit and making connections with strangers in a crowd, Asperger’s may seem like an improbable fit. However, Michael says that his autism provides the fuel for his comedy. “Comedy is one of the only mediums that turns failure into a strength — turns it into a weapon that you can use to entertain people.”

During tough times in grades 7 and 8, his parents encouraged him to write out his feelings in a journal. The journal soon gave way to any piece of paper he could find, and the venting soon turned into punchlines. As so many comics before him have also discovered, Michael realized that when he made fun of himself onstage, he could get the last laugh.

Michael describes himself as an extrovert, and compares some social situations to drowning, attesting that it’s hard to be surrounded by so many people every day and be unable to form a connection with any of them. His comedy helps him form that connection through laughter. While some may say the laughter is coming at his own expense, as he makes jokes out of some of his life experiences, Michael is only too happy to do it. “It’s less like a comedy show and more like group therapy,” he said.

Of his performance, his mother says, “I love the way…the audience responds to it… There’s a lot of people who follow him that are also on the spectrum…and it helps teach them how to manage it, how to laugh at yourself, how to laugh at other people or laugh at people who laugh at you.”

Michael has performed more than 150 times, mainly at autism conferences, but is working on going more mainstream; to reach more people in his quest to redefine “normal.”

As for his audience, Michael says: “I’m hoping that they laugh first, and learn second. I’m hoping they have a good time, but retain that we can also laugh…we also have a sense of humor…we can belong as well.” When asked to define “we,” he clarifies, “People with Asperger’s, autism, on the spectrum, you know? We also have a sense of humor.”

To the Mom at the Water Park: Your Kids Gave Me Hope

When Stephanie Skaggs took her 5-year-old daughter Baylee to Kentucky Kingdom last Friday, she didn’t plan on talking to another mom there about her kids’ behavior. But before their visit to the water park was done, that’s exactly what she did. And, because Stephanie wasn’t sure she got her point across, she decided to tell the entire story on her Facebook page when she got home.

What awful thing happened that forced one mom to have to talk to another mom about the way her kids had treated her daughter? Well, it’s not what you’d expect.

Baylee has autism, and is mostly non-verbal. Stephanie had been working with Baylee on waiting in line for the water slide as patiently as possible. She had developed a whole routine for her daughter, and her daughter was learning it, and showing more patience, each time they got in the line. Unfortunately, not every child successfully waits their turn, and soon enough, Baylee was getting cut in line. As Stephanie wrote, “for the most part no big deal, except for a kiddo like mine, who really doesn’t mind much that she had to wait longer, but is very upset that the steps of the routine she just learned are now out of whack.”

As parents, grandparents, and teachers know, coping with unexpected changes is not something that comes easily to most kids with autism, and Stephanie braced herself for either Baylee’s reaction or other people’s reaction to Baylee’s reaction. That, Stephanie wrote to the unknown mom, “is when your daughter looked up at me and said ‘she can go ahead of me.’” Baylee hadn’t even had time to get upset, so Stephanie chalked up the girl’s behavior to her just being sweet and well-mannered.

It wasn’t long before Baylee got cut in line again, and again the child in front her—this time a boy—let her go before him. Stephanie again praised a child she didn’t know for his kindness and good manners. She was surprised to find two different children who seemed to intuitively know how to be kind to Baylee. Then she saw them together and figured out they were siblings.

“I told them both how great it was that they looked out for someone who was different.. and the difference that small acts of kindness make even if it doesn’t seem like much. They really touched my heart.”

Then Stephanie asked the boy to point out his mother, so she could praise her for raising two compassionate children:

“When I came to you and told you about my experience with your kids and told you that they were super kids and you are doing a great job, you said ‘I don’t know about that.’”

Most of us are never totally sure that we’re raising our kids as well as we intend to, or that they’ll take our words and turn them into actions. It’s obvious to all of us, except this mom, that she’s doing a fantastic job. We could use more like her.

As Stephanie went on in her Facebook post:

“Sure your children’s kindness helped in that moment to avoid a meltdown, and that is kind of a big deal for kids on the spectrum, but I will tell you what is an even bigger deal though, and that is that it gave me some HOPE! When I looked at those sweet little faces, filled with pride as I praised them, it made me happy to know that more moms are raising their children the way you are! So I just wanted to take the opportunity again to thank you and let you know you are doing a really really good job!”

We heartily agree!

Apple Store Field Trips: Apples, Smiles, and Superman

Apple Store Visit

As an Apple Distinguished Educator and the head of Instructional Technology at Wildwood School in New York State—a comprehensive educational program for students with autism spectrum disorders, neurological impairments, and complex learning disabilities—I am thrilled with the opportunity to set up multiple trips to our local Apple store. I work closely with our educators and the store’s educational team to provide a fun and meaningful learning experience for our students with autism and developmental disabilities.

Recently, some students from every level, along with some of the adults in our Day Hab program, went to the Apple store at Crossgates Mall in Albany. We had already decided on the general topic, and students would be creating digital memory books using iPads and the app Comic Life 3. During past field trips, we used iMovie, Keynote, and several other creation tools.  To prepare for this specific trip, I had asked the staff to familiarize themselves with Comic Life 3 and have the students do some pre-planning so they could focus on the experience when they were in the Apple store.

The beauty of these trips is that all students have the opportunity to share their voice. With the support of the educational store team and our staff, students become creators, authors, communicators, and collaborators. No matter the device, students can create and share their voice by whatever means works for them. Whether they use built-in accessibility features to communicate in pictures, voice, text, or a combination of two or three, every single person creates a product that represents who they are and the memories that are meaningful to them. Every single individual has a voice and has the opportunity to share that with others.

These trips are about far more than simply creating—they’re more about the process than the product. They allow students to work on important and essential skills, and the Apple store educators understand and embrace this. For some students, it’s about walking and navigating a mall/store safely. For others, it’s about seeking out a staff person and asking for help. Some students practice waiting skills, and others practice collaboration and cooperation skills. There are endless opportunities for skills practice and generalization.

With the support of everyone involved, and a fun and engaging project as the foundation, every student finds success, shares their voice, and leaves with a smile. Thanks to the Apple store, they also leave with a t-shirt and a USB bracelet with their project on it (or something similar), so they can share it with their families, their peers, and school staff. I have witnessed students hurry back into the school after a field trip, and immediately ask to share their work with others. The ability to see their products on the large screen is amazing, but pales in comparison to the look of pride on their faces. Then to see their educational team extend these lessons, sometimes through the entire year, is really something special.

For some pictures, samples, and smiles from this specific trip, please see the pinned post on my Educational Technology for All Learners Page. I would love if you join in this community with me and share your related stories and experiences as well.

I encourage you to reach out to your local Apple Store and learn more about what they offer for field trips and other group trips. The focus is on the individual; ensuring they have a memorable and meaningful learning experience. The impact the Apple store staff has on their community is great and often goes unnoticed. They are more than a retail store: They are educators and advocates with a passion to create positive change in the lives of those around them. One of the educational creative team members at Apple Crossgates recently reminded me of a memory she cherishes from our first trip to the store years ago. “The first year you brought students to the store when I was here, there was a young man who wrote an alphabet book in Keynote,” she shared. “At the end he said, ‘I wrote a book! I’m like Superman!’ It inspires me regularly and reminds me of how important your work is and Wildwood’s work is, as well as the small contributions we can make from this store.”

Let’s give all of our students and children the opportunity to share their voice with the world, in whatever way possible. Let’s keep creating, collaborating, communicating … and proudly smiling.

In the words of Steve Jobs: “What is Apple, after all? Apple is about people who think ‘outside the box,’ people who want to use computers to help them change the world, to help them create things that make a difference, and not just to get a job done.”

His Laughter Is Contagious

Justin Sellers, the photographer for Jackson, Mississippi’s Clarion Ledger, recently attempted to interview his younger brother, Jack, about a summer camp for children with autism spectrum disorders that Jack attends.

Center Ridge Outpost was built and is run by Together Enhancing Autism Awareness in Mississippi. The organization hosts both children and adults with autism, with the goal of giving them the quintessential camp experience of friendships and activities, and even a little independence. It also aims to improve campers’ social skills.

As Jack was explaining to his brother in the interview, “It has a zipline, and archery and you can have dinner and go swimming. And I made a lot of new friends.”

However, Center Ridge Outpost is relatively rural, and while Justin was interviewing Jack, cows started mooing. The result is pure gold: Jack in a fit of giggles.

To learn more about Center Ridge Outpost and see the entire video, click here.

‘Wow! My Autistic Child Is Socializing!’

There’s no denying that the Pokémon Go craze has taken a few countries by storm. If you’re like me, you’re probably way past eye rolls at the mention of Poke gyms and Poke stops and more. But the incessant chattering about all things Pokémon Go has a huge silver lining—it’s helping to get many people (kids and adults) out of the house and socializing with strangers. Especially kids with autism. And that’s a wonderful thing.

Take a look at this heartwarming note from Brooklyn mom Lenore Koppelman about the impact that Pokémon Go has had on her son, Ralphie. Six-year-old Ralphie was diagnosed with autism and hyperlexia four years ago. He doesn’t interact with strangers and doesn’t tend to be very adventurous. He likes his routines and doesn’t typically like them disturbed. That is, until Pokémon Go.

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Since he started playing the game, his parents have noticed that Ralphie secludes himself a little less than he did before, and also talks more to the people he’s familiar with. Given the positive effects of Pokémon Go on her son, Lenore does recommend it to the parents of other children on the ASD spectrum, but cautions them to keep an eye out:

“It’s tempting for Ralph to wander off to find Pokemon, so I have to keep a close eye on him,” she said. “However, I don’t want to be so afraid of the dangers that I deprive him of the potential positive outcomes as well.”

Autism Didn’t Stop Him From Winning Taekwondo World Title

TaekwondoEthan Fineshriber was diagnosed with autism at the age of three. As he got older, he did well academically, but not socially. “He basically had no friends,” said his mom, Mara. In order to get him to exercise, and to interact and engage with other kids, Mara enrolled Ethan in Taekwondo classes.

Ethan was interested from the first day, especially with the stuff he could learn and memorize. “He felt more confidence about himself,” said Mara, “and it helped him kind of come out of his shell.” Pretty soon, his instructors recommended that he consider competing in the sport.

Ethan started competing in national competitions and winning them. He then set his eyes on the Taekwondo World title. After three years of training, 11-year-old Ethan won the ATA World Championship with a nearly perfect score of 999. “I felt nervous that I wasn’t going to win, but I thought I had a chance.” said Ethan. “Then the judges called the number and everybody around me went insane.”

His friends, explained a tearful Mara, rushed the ring and hoisted Ethan onto their shoulders. “They hugged him and congratulated him and shut the ring down.” It was a dream reached not just for Ethan, but for Mara too: Her son had gained confidence and more friends than she could have imagined.

And Ethan’s not done yet—he plans to keep training, and keep winning Worlds.

Teacher Tells Student With Autism, ‘These Tests Only Measure a Little Bit of You’

Ben1Gail Twist was so surprised, and gladdened, by a letter sent by her son’s teacher, that she posted it on Twitter, along with the words: In tears. A letter to my 11 yr old autistic son from his school. “These tests only measure a little bit of you.”

Her son, Ben, attends the Lansbury Bridge School and Sports College in St Helens, U.K., a school for children with “complex learning difficulties.” This was his first year at the school, after he switched from the mainstream school that he’d attended for years.

Ben was the only student at Lansbury Bridge this year who took the SATs; unfortunately, he didn’t pass them. Instead of simply sending the results to his parents though, assistant head teacher Ruth Clarkson wrote the letter below, and sent it directly to Ben. In it, she recognizes that the tests only measure a small part of Ben’s knowledge and the person he is. She goes on to list his talents that she and the other teachers clearly see, including his kindness, his musical ability, his ability to make and keep friends, his artistic talents, and so much more.

Ben’s mom, Gail, told The Guardian: “He is all of the things they wrote about him – he is an amazing person. I think their words will stay with him if we keep reminding him what they said about him. When I told him he said: ‘Wow, do they really think all those things about me?’ It’s just a beautiful thing to do.”

She went on to say, “He’s such a sensitive and loving child and he’s got an amazing sense of humour – it’s amazing that the school are able to recognise that our children have other qualities than what they are tested on.”

With the current controversy about our education systems requiring teachers to “teach to the test” instead of to the individual, it’s heartwarming to hear about teachers who go above and beyond to recognize their students’ achievements. Having educators in our lives who recognizes our abilities and talents, especially when tests can’t measure them, is simply priceless.

Firefighters vs. Autism Works to Prevent Tragedies

Firefighters vs. AutismJustin Lewis is the dad of a child with autism, and a firefighter in Golder Ranch, Arizona. Because of both roles, Justin became concerned with the number of children wandering away from a safe environment (50% for children with autism), and the number of deaths of kids with autism that were attributed to drowning (91% for kids under 14, according to the National Autism Association). So, in 2013, he founded the non-profit organization, Firefighters vs. Autism, which operates out of Tucson.

The group’s mission is “to end wandering-related drownings and childhood deaths in the autism community.” They do this through education and awareness, so that the larger community—as well as parents of children with autism—learns about the threat of wandering and drowning for people on the autism spectrum. Firefighters vs. Autism also helps provides special training for firefighters and first responders, who typically aren’t trained to help children and adults with special needs.

As a firefighter, Justin knows that many emergency situations are preventable of people paid a little more attention and took a few relatively simple precautions. Therefore, the group raises money to pay for swim lessons, pool fences, autism service dogs, and equine therapy, for families that can’t afford it otherwise. They also host workshops and seminars to educate and spread the word about drowning and wandering awareness.

Firefighters vs. Autism has pioneered its own PASS alarm—Puzzle Alert Safety System—for southern Arizona, whereby members of the community can sign up to receive an alert any time somebody with autism goes missing in their specific area. The alerts are sent via email or text, and help establish an active network of people looking for the missing person.

For Justin and Firefighters vs. Autism, it’s all about preventing tragedies. And the best way to do that is through education, awareness and effort.

Sensory Friendly Kits Available to Diners at Mary’s Pizza Shack

Autism Kit2Mary’s Pizza Shack in Northern California has begun offering “sensory friendly” kits to customers. The kits, which were first announced in April, are part of a joint initiative with Anova, a local non-profit autism services organization. Anova reached out to other Sonoma-based restaurants, and Mary’s was the first chain to express interest.

Mike Clark, the manager of the Mary’s Pizza Shack in Sonoma Plaza, said, “We have a number of employees whose lives have been touched by autism or learning differences in one way or the other and so our staff was 100 percent enthusiastic about our partnership with Anova.” He wants to show sensory-sensitive people that, “they are welcome here.”

Anova co-founder Andrew Bailey noted, “Many families [choose] not to dine out or enjoy many activities because of the overwhelming challenges involved. We want to turn that around by equipping restaurants such as Mary’s Pizza Shack with tools that will help create a stress-free dining environment for those families in need.”

The tools are meant to keep sensory-sensitive individuals, no matter what their age, from feeling overwhelmed in a public place. They include a weighted lap pad, noise-reduction ear muffs, a chart with an emotional scale on it, assorted sensory toys, and one small item for the child to take home with them. They come packed in a plastic “toolbox” with instructions and the children and families are free to choose and use what they’d like. All of the items are thoroughly cleaned before being packed back into the kit for the next person. The kits are free and available to anybody upon request.

Each of Mary’s locations carry the kits, and each restaurant has a sticker on their window advertising their availability. The chain also plans to have tent cards on each table informing diners about the kits. Anova hopes that word about the sensory-friendly kits spreads through word-of-mouth, and with the help of the local radio station, and that other restaurants and businesses sign up to offer the kits. Anova’s end goal is to encourage inclusion in their community, and also enable families with special needs to go out to dine, shop, and participate in typical community activities.

Additionally, Anova has providing sensory training for all employees of every Mary’s Pizza Shack restaurant, and has developed an informational video for them. Mary’s Pizza Shacks are now the first sensory-friendly restaurants in Sonoma County.