Finding the Beauty – An Autism Story

Angela Conrad - Finding the Beauty 1Autism is hard, without a doubt. I’m sure many of you would agree to that. As parents of children with autism, we face a wide range of emotions and challenges daily. There are times when I feel like I’ve been beat to the curb. However, at other times I couldn’t be more overjoyed by my children.

Too often in life, people focus on the “negative” things. When it comes to autism, it’s very easy to get caught up in the hustle and bustle of life with autism. For example, it is by no means ever calm and quiet in my house. Even though I have one child who is non-verbal, that simply doesn’t mean that he is quiet! He, along with my other son with autism who is verbal and loves to talk; well, our house isn’t exactly the place you go to in order to relax. I’m normally chasing Trenton around the house, trying to keep him from climbing up my walls (literally!), while Andrew is chasing after me, asking me every detailed question that he can come up with.

It’s easy to focus on all the tantrums, meltdowns and therapy schedules. Of course, it’s upsetting when we can’t participate in extended family functions or all the community activities that go on throughout the year.

Let’s not forget all the times we’ve been kicked at when it is “potty” time. All the minutes and hours throughout the day and week that we spend battling simple daily tasks just gets exhausting. Natural, daily functions are very complicated, time-consuming and often lifelong difficulties for children like mine.

The stress and overwhelming feelings are very easy to get caught up in as parents of children with autism. We often find ourselves not only lonely and jealous of people who live life without our challenges, but we often find ourselves battling a variety of other emotions daily.

Nonetheless, we have to stay positive and not forget to look at the beauty that’s right before our eyes.

Parents of children with autism and other special needs are so very blessed, if only you’re able to look beyond the difficulties. I have learned to appreciate everything in this life, both big and small. My sons have taught me to be thankful for things that I, more than likely, never would have appreciated before autism.

My children, just like yours, have so much to offer this world. You can find many blessing in your child, whether they’re mildly on the spectrum or at the most severe place on the spectrum. Our children are just like a present: It may take awhile to unwrap it, but there’s a beautiful gift inside when you get there. It is the most precious gift that you will ever receive.

I am not saying it’s easy. It’s by no means an easy job parenting children with autism. If you’re like me, you often function on very little sleep because your child was up all night. You may find yourself at your lowest point on certain days and that’s okay. We’re allowed to have pity parties, but try not to dwell on it. Find the beauty in your child. God granted us our children for a reason. I am sure none of us dreamed about having children with autism when we were expecting our children. However, God had different plans in store for us than we originally had.

My children have not only become the best teachers that I’ve ever known, but they’re also the most beautiful, innocent people that I’ve ever met. They are true examples of what all of our souls need to be like.

As I said before, I know how easy it is to get consumed with the difficulties of the world of autism. However, don’t let that keep you from seeing the beauty of it, too. If you can see the beauty and opportunities that are right before your eyes, then you will never again wish for a life that could have been.

Keep your heads held high, fellow autism parents! We don’t have an easy job, but it is a beautiful path!

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Angela and her family reside in Terre Haute, Indiana, where they moved to get more help for her son with severe autism. She was born and raised in a small town in southern Illinois where her love for animals and helping others blossomed.

She enjoys sharing the honest and real side of autism through her writing. Her writing may not apply to every family with a child with autism, but it is sure to apply to the families raising children on the severe end of the spectrum.

To read more of Angela’s journey please visit her website or like her Facebook page.

I Get Jealous

jealous momI’d be lying if I said I never get jealous because I do. Is that bad?

It’s one of those things that I hate to admit but it happens. I get jealous! I am a special-needs mother and I simply get jealous of non-special-needs mothers.

Now, don’t get me wrong, I have a great life. I have two wonderful boys who both happen to have autism. My oldest has severe autism and my youngest has mild autism. There are certain days that I feel like I could be an autism expert! I mean, how could I not be? I’m raising a good range of the whole spectrum in my house daily. I fight the daily battles of having a non-verbal child. Yet, I fight the daily battles of having a child who is VERY verbal with no filter whatsoever! Needless to say, our life can be very interesting and our house is never quiet.

With Trenton, I fight the issues of having a child who is in his own world 24/7. At the same time, I fight the issues of having a child who wants to be in everyone else’s world 24/7. My son Andres is the definition of hyper-social! My daily experiences with my sons are completely opposite. I could discuss the range of the spectrum in depth to the fullest that it has ever been spoken about. However, I’ll save that for another day.

Roller-Coaster Life

During my roller-coaster life I often find myself fighting jealousy. It creeps in like a thief in the night. On some days I feel like it comes out of nowhere—but does it really come out of nowhere? Maybe it came in a little bit at a time when I didn’t even notice. Maybe it sneaks in behind my strength I show every day. Maybe, just maybe, it’s always there but I block it.

Jealousy is all around special-needs parents. I never know what kind of emotions I’ll have and battle with daily until the situation arises. Sometimes we’re mad, happy, tired, sad, jealous and desperate. Sometimes we feel defeated and hopeless, but driven. On some days we are enthusiastic, courageous and frustrated. The list of our roller-coaster emotions could go on forever. However, the one that creeps in most often is jealousy.

Communication

I get jealous when I see children Trenton’s age that can communicate. I get jealous of other children and parents when I see Trenton have a meltdown because of his frustration at not being able to communicate. This jealousy of other children turns into sadness and I am sad once again for my child.

Jealousy comes when I see the sadness and fear in Andrew’s eyes. Andrew’s eyes are a strong voice that give away his wave of emotions when he doesn’t want to tell me. I get so jealous of the children his age that don’t have to fight the social fears that he does. Once again, my jealousy turns into sadness and I am sad for him—sad that he has to fight these daily battles.

Simple Tasks

I get jealous when I see other mothers at the grocery store with their children. I get jealous of the children who are walking along with their mothers, not having any meltdowns or battling any sensory problems while in the store. I get jealous at the mothers who can do the easiest and simplest task with their children because sometimes the easiest and most natural task takes days of planning and preparation for us.

Date Night

I get jealous of the parents who can go out and have a date night with their spouse. Not everyone is jumping at our door, excited to babysit a child with severe autism.

Sports

I am jealous of the children who get to play t-ball and who get to participate in all the social activities that most children enjoy. I am jealous of their parents who get to go and watch their children take part in “normal” extracurricular activities. I am jealous of everyone who gets to sleep at night. Our house doesn’t know what it’s like to sleep. My list of jealousy could go on and on and on, forever.

Me Time

In fact, if you’re a parent that can even let “your guard down” for a few minutes, then I am jealous of you too! I don’t know what it’s like to let my guard down for five seconds. My guard is up and going strong every minute of the day with two boys with autism.

Jealousy hits often and when it does, it hits hard. No one even knows when I am battling it because I don’t let it show. I’ve learned how to smile and live life to the fullest behind those jealous thoughts. I’ve learned how to hide the pain and keep it from interfering in my life.

I have always been known to be a down-to-earth, simple girl who has always been grateful for what I have been blessed with in life. I am beyond grateful for my two boys. I wouldn’t trade them or our life for anything in the world. In fact, my boys have made me a much better person because of their special needs.

With that said, getting jealous of others is human nature. Jealousy takes over when I just want to have a “normal” day with no autism battles. However, at the end of the day, I am beyond blessed in life. I couldn’t be more grateful for my sons and their special needs. They are truly worth it.

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Angela and her family reside in Terre Haute, Indiana, where they moved to get more help for her son with severe autism. She was born and raised in a small town in southern Illinois where her love for animals and helping others blossomed.

She enjoys sharing the honest and real side of autism through her writing. Her writing may not apply to every family with a child with autism, but it is sure to apply to the families raising children on the severe end of the spectrum.

To read more of Angela’s journey please visit her website or like her Facebook page.

Holidays and Autism. It’s That Time of Year Again.

It’s that time of year again where most people start bouncing off the walls with excitement. We just had Halloween and now most people are getting their Thanksgiving plans in place. In fact, once Thanksgiving is here, it is officially that time of the year where everyone is thinking about the holidays and finding just that perfect gift for their loved ones. Before you know it, you are invited to not only your office holiday party, but your neighbor’s party, your side of the family’s party, your spouse’s side of the family’s party, and the list goes on and on. The average family thrives on all the joy and excitement that this time of the year brings. However, to many families, it simply brings nothing but more stress, anxiety and heartache.

To my family, the holidays are a very stressful time. It is a guarantee that, if we do attend a holiday party, we will be paying for it that night or even the next day. The extra stimulation is just simply too much for Trenton and can send him into sensory overload. That, of course, happens if Trenton even lets us step foot into the holiday party. Most of the time he goes into a meltdown just entering in an unfamiliar place and, before we know it, Trenton’s tears, screams and body slamming starts immediately.

It goes without saying that, if we do have the privilege of staying at a holiday party for a little bit, it is anything but enjoyable. I spend my whole time chasing Trenton around the party, making sure he isn’t going to break something. I am on his heels picking up the destruction that a child with severe autism can make in a matter of seconds, while everyone’s eyes are on me, staring at us in utter amazement.

Truth be told, it is just so much easier to turn down every holiday invitation. However, when I say we won’t be able to make it, I often get a confused look and I’m asked why. Now, how in the world do you explain to people who do not live with autism why you can’t make it?

As you can see, the stress never goes away! I have yet to decide which way is the easiest.

Next comes the question, “What would Trenton like this year?” Honestly, I have no idea! He is a five-year-old boy that is nowhere close to playing with appropriate toys. In fact, he doesn’t even play with toys. All he does is walk and pace around the house and occasionally play with one of his stuffed animals or animal figures. As his mother, I have no idea what to get him let alone what to tell everyone else to get him. Sadly, there is no guarantee that, after everyone spends money on him, he will even play with the toy. He may unwrap the present or he may unwrap it a week or two later. If he does unwrap a gift, it is often followed by disappointment on the giver’s face because he unwrapped their gift but tossed it to the side like a piece of trash. Deep down he may really like the gift but it’s just not what he wants at that moment. Getting others to understand that is a hard one.

Let’s not forget that during the busy holiday season we often have to deal with schedule changes. Schools and therapies are closed more to give their employees time off. We all know that schedule change and getting out of a normal routine can be brutal to many individuals with autism.

This time of the year can make us sad and jealous. I often get sad hearing about everyone’s big holiday plans and holiday traditions. I hate to admit it, but I get a little jealous too! Oh, how I long to have a wonderful fun-filled holiday tradition. How can we not get sad and jealous when the picture-perfect holiday times are all around us? I have not yet seen a holiday movie with the struggles an autism family goes through. As a matter of fact, almost every holiday movie is about the perfect ending for the holiday season.

The list of the stress that the holidays brings to families with autism could go on and on. If you’re like me, you can breathe a little better come January 2nd every year. Even though it’s hard and a very rough time, I take comfort in knowing that I am not the only mom or family going through the stress of the holidays with severe autism.

To my fellow autism families, hang in there this holiday season. We will get through it, like always.

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Angela and her family reside in Terre Haute, Indiana, where they moved to get more help for her son with severe autism. She was born and raised in a small town in southern Illinois where her love for animals and helping others blossomed.

She enjoys sharing the honest and real side of autism through her writing. Her writing may not apply to every family with a child with autism, but it is sure to apply to the families raising children on the severe end of the spectrum.

To read more of Angela’s journey please visit her website or like her Facebook page.

To the Wonderful Men in Our Lives… Thank You for Everything

It has been three years since we said our “I do’s” and like everything with us, our journey to happily wedding bliss (depending on the day you ask!) was anything but “average.”

We literally do live with the motto of “Live, Laugh and Love” — all thanks to our Ethan and the road he has brought us on.

We don’t mind people forming opinions about us: People will do that whether we mind or not, so why bother being upset about it? We spend a lot of our time being upset, worrying over things we cannot change. Things that are just unfair. Things that no parent should ever have to face. We stare that in the face daily. So people have opinions about us — so what?

There is nothing truer than this: Those who mind don’t matter and those who matter don’t mind. (Dr. Seuss)

We wanted to get married for a few years, but with me being a carer and D just not earning enough, it seemed like an impossible dream. D knew I would never get married without having Ethan there. With the rate of us saving money compared to the cost of Ethan’s progressive condition, we knew deep down we would probably never have “our” day.

That was until D applied to… wait for it… Don’t Tell The Bride. Yes, the TV show.

I can already hear the chorus of voices saying, “I’d never ever do that!” Well, it was never in my wedding day plans either, but when you have a terminally ill child, your views, opinions and hopes change.

I just wanted my son to be with me on my wedding day.

The title of the show gives it away: I didn’t know anything about our wedding day until the day of our wedding – 7th November 2012. It was magical and, thanks to a TV show, we had our wedding with all of our little family beside us.

The eight years before we said our “I do’s” are the years that shaped us as a family. They are the years that cemented us together.

We sat in many doctor’s offices, begging them to listen to us when we said: “There is something going on with our son, Ethan.” Each and every doctor we saw for exactly five years told us the same thing. He’ll grow out of it. Children meet milestones at all different ages really. Geraldine is an over-anxious mother. D talk to her, she’s seeing things that are not there. It’s a cold, some kids find it hard to shake off a cold: my own had a constant cold for months last winter. Did you breastfeed Ethan, Geraldine? Ahhh see now? Bottle-fed babies tend to get sicker more often…” These are only some of the comments made to me and about me.

After each visit, D would hold my hand and tell me: “A mother knows, Ger. We’ll get to the bottom of this, promise.” To have someone stand with you and believe in you when doctors are telling you that you’re wrong; well, there’s no comfort like that. We traveled a long road to get Ethan a diagnosis, and D was beside me each and every step of the way.

  • Global developmental delay
  • Sensory processing disorder
  • A heart murmur; a valve not behaving itself
  • Hearing impairment
  • Autism
  • Mobility issues
  • ADHD

Finally, in 2008, all these symptoms added up to Hunter Syndrome: a life-limiting condition for which there is no cure. Now doctors said “Go home and love him. You won’t have him for a long time. We are so sorry.”

Together, D and I went through friends deaths, a house fire that left us with nothing (we were very lucky and stayed with D’s parents until we found our feet again) and then Ethan’s diagnosis. Life seemed to be playing a cruel prank on us.

I remember talking with D for hours, late into the night, offering him a “get out of jail free card” after Ethan’s diagnosis. I genuinely felt that he really could leave as he owed me nothing. Asking him to face this with me seemed selfish on my part. I could see the pain on his face before he ever opened his mouth. I had caused the man who had been on this journey with me for years more pain than I ever could have imagined, just by saying something I thought I should say.

I tried to take it back, but he looked right at me and said: I’ve been Ethan’s dad since I met you, pretty much. He was just 18 months old when I first laid my eyes on him; he is now 6. Do you think I would really leave? Do you?”  I looked at the ground and gestured “no” as he continued. “I love our family. You don’t need to say things like that to me. You don’t. I’m your partner and a daddy to my two little boys. One day we will get married and do all that jazz, but now–” He reached out for my hand. “Know I am always in your corner… unless you give out about Star Wars,” he laughed. “Ya silly woman!”

That was the moment I knew I had something great in my life and that I always would. My (now) husband: my D, my partner, my buddy and the one who always makes me laugh.

And so, seven years later, we are here. Ethan is 13, J is 10 and the toddler is 2.

D will always give me a break once he gets home from college. I don’t have to ask.

D will insist I make a date with a friend so I can have a few hours to myself over the weekend.

And when Ethan has a meltdown in a public setting… Well, watching D deal with Ethan is so heartwarming, it still catches in my throat when I witness D’s approach and how quickly Ethan responds to him.

I have rarely had to leave a family gathering due to Ethan’s sensory issues. D is the one that leaves, reminding me to relax while he brings the three boys home so I can fully engage with our families.

Yes, D has his faults. Star Wars, for example!

Yes, we argue. Yes, we take our stress out on each other. And yes, we do not have a perfect marriage. But there is no one else that walks this earth who I would rather argue with.

We know we are both lucky and we know we are both in this together. No matter what, we will always have each other.

To all you wonderful dads, partners, step-dads… You don’t get enough praise for all you do, you really don’t. Thank you for make the world a brighter place for us all. x

Ger Renton———————————

By Geraldine Renton

Read more from Geraldine by visiting her website and Facebook page. Geraldine began to write privately as therapy and recently began writing publicly about learning to live, love and laugh again since her son was diagnosed with Hunter Syndrome.

Arts and Autism: An Increasingly Easy-to-Find Combination

The recent disturbance by a child with autism at a play on Broadway has brought something to the public’s attention that many of us have known for years. It is difficult to take our children to cultural places and performances.

Engagement with art and theater is important, however, as research shows. The ongoing addition of the Arts to the much-touted STEM curriculum in schools—to form the new STEAM (science, technology, engineering, arts, and math) initiatives—shows just how important a role Art plays in life, as well as intellectual development. Furthermore, as this article on PBS Kids points out, “Learning to create and appreciate visual aesthetics may be more important than ever to the development of…children as they grow up.”

So what are parents, grandparents and other caretakers of kids with autism to do? Take heart, that’s what, because there’s been a dramatic rise in the number of plays, concerts, exhibits and other artistic events geared specifically to children with autism and sensory processing disorders.

The Blue Men Tone It Down

Anybody who’s been to a Blue Man Group show knows that engagement in the arts can be a sensory explosion. Noise, lights, crowds—it’s like giving your child a cocktail of liver, pickles and orange juice and expecting him to keep it down. You’re just setting your child up to fail. And, while we’d all love for our children to experience the joy and exuberance of a live music show, it’s much more likely to end in tears, and possibly terror, than happiness.

But take heart: The Blue Men have recently introduced a version of their show that’s geared towards fans with autism, with their goal to provide a safe environment for those with sensory issues. Changes to their typical presentation include: reduction of their sound and light levels; available sound-reducing headphones; a subdued approach to their audience, including limiting their typical “chair walking” where they interact with the audience; and the utilization of the theater’s lobby as a calming place for families that need a break from the excitement.

Creating Musical Autists

An organization called The Musical Autist has introduced Sensory Friendly Concerts® to bring jazz and classical music to audiences who might not get to experience them otherwise, as well as a venue for musical “autists” to perform their works. The group is striving to prove the validity of community music therapy as important to the health and well-being of individuals with autism, and the community as a whole. They also want society to realize that “autistic culture” can be included and accommodated alongside neurotypical performers. The concerts are currently available in seven locales across the U.S.

Interactive, Imaginative Theater

Lincoln Center in New York City recently wrapped up a month-long run of Up and Away, an original production commissioned by Lincoln Center Education specifically for children on the autism spectrum. The production took two years to make, with the intent of creating “an environment where there’s no right way to experience the show.” As Jonathan Shmidt Chapman, the director of Up and Away explains in this video, the Trusty Sidekick Theater Company, which created and produced the play, worked with children with autism to create this wondrous spectacle: “Theater that’s made for them. Theater that can engage and enchant them. Theater that can unlock their imaginations.”

The Rose Theater in Fremont, California also just finished multiple showings of an interactive production called “A Palette of Possibility” that allows children to get up and mingle with the actors if they desire, or stay seated in one of many bean bags, stools, carpet squares, or other diverse seating offerings. Audience members are encouraged to use props, move around or even make sound effects as part of the show, which utilizes four of five senses (no taste), but nothing unexpected, jarring or loud.

Museums Go Hands-On

Museums throughout the U.S. and U.K. have begun offering special hours or exhibits specifically for individuals with autism. As an example, the Museum of London has its Morning Explorer program, open to children on the spectrum who are 13 or younger. The program opens some of the museum’s galleries one hour early on certain predetermined dates so that these children and their families can explore at their own pace.

The Museum of Fine Arts in Boston has a special monthly program titled “Artful Healing” that’s designed for 8 to 12 year-olds on the autism spectrum. The children are grouped by age and/or needs and the 90-minute class includes both exploration of the art galleries and an art activity. One adult can accompany each child for free; the fee is currently $9 for the child.

This is by no means intended as a complete and comprehensive list of arts and music programs that are autism-friendly, but instead meant to showcase the rise of autism-friendly shows, exhibits and concerts. Many movie theaters have also started hosting autism-friendly showings of kid’s movies geared specifically for children who can’t stay seated or still or even quiet for the entire time.

In order to find a program in your neighborhood, ask around or search the Web. Many programs are one-offs or have short runs. However, we can all help change that by supporting and attending them when they’re available—as the saying goes, ‘vote with your feet.’ While it can be troublesome to get your child out the door and to a show or museum exhibit, there’s a very good chance it will be more than worth it: That an introduction to the Arts will open your child’s eyes and world in ways you never imagined.

Art is that powerful.

Love Needs No Words

Two Brothers One JourneyRaising a child who is unable to communicate has been one of the most challenging parts about autism. It is not simply just the fact that he is non-verbal but, at this time in his life, he remains unable to communicate. Even though we have shed countless tears together through our frustrations of not being able to communicate, Trenton has taught me that love needs no words.

Oh yes, I long for the day when Trenton can communicate to me. Just like any parent of a non-verbal child, we want to hear our child’s voice. I am blessed with the fact that Trenton can say a few words, such as “juice”, “cookie” and “ice cream.” However, it doesn’t go much beyond that.

Even though his words are limited and his ability to communicate through any other method is also limited, he has been the greatest teacher that I have ever had. He has taught me a lot about love, acceptance, courage, strength, patience, determination, perseverance and many other things in life.

I have learned through Trenton that there is much more in life than words spoken from our mouth. Trenton speaks volumes daily through his actions. Sometimes I have to dig deep to figure out what he is doing or what he is trying to relay to me. On some days it is not easy to figure out what he wants. I have gone into meltdowns myself trying to figure out what he wants because I was having a difficult time trying to figure it out. The anxiety that builds up in me when I am trying to figure it out before he reaches his climax and goes into a meltdown is very nerve-racking. I am sure most parents of a non-verbal child with autism know exactly what I am talking about.

Even though our days are not easy, they are very rewarding. The way his eyes light up when he knows I figured out what he wants is priceless. The little pat on the leg he gives me when he is happy is his way of thanking me. The happy noises I hear from him are the sweetest music that my ears have ever heard.

In our house, we do not need any words.

Nonetheless, just like any other parent who struggles daily raising a child who is unable to communicate, I dream about his voice. I dream about talking to him. I dream about the day he will walk up to me and say, “I love you, Mom. Thanks for everything that you do.” Oh how I dream!

There is nothing wrong with dreaming about that day. Don’t we all think about and dream about things that we want so badly in life? Some days are much easier than others.

Some days the frustrations are not as apparent as other days.

So, to the parents of non-verbal children out there, I understand your pain and struggle. I know the numerous tears you have shed for your child and with your child. The highway we travel on this journey in life is a tad bit difficult. However, the joy our children bring to us is magical. We can communicate with our child with no words at all. If you are like me, you have learned every sound that your child makes and you know exactly what he wants from that sound.

Never give up hope! Continue to cling to hope because it’s what helps us get through our days. I understand how much you want your child to speak; I know how it feels to want something so badly that it hurts. However, until the day comes when we can hear our children’s voices, let’s be theirs for them.

Treasure the love you and your child share without words. It can be quite beautiful and amazing.

Love needs no words.

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Angela and her family reside in Terre Haute, Indiana, where they moved to get more help for her son with severe autism. She was born and raised in a small town in southern Illinois where her love for animals and helping others blossomed.

She enjoys sharing the honest and real side of autism through her writing. Her writing may not apply to every family with a child with autism, but it is sure to apply to the families raising children on the severe end of the spectrum.

To read more of Angela’s journey please visit her website or like her Facebook page.

Counteracting the Disappointment of Birthday Parties

There is only one thing worse than my 6 year-old high-functioning autistic daughter Polly not getting invited to birthday parties, and that is getting invited to birthday parties!

My girl has suffered from allergies forever, and has been on a heavily restricted diet since she was 2. Cow’s dairy, gluten and corn-derived ingredients (of which there are many) are all on the banned list. I cook from scratch when we are home, but it can make life difficult when we eat out, and especially so when other people are catering for us.

Birthday parties are at the top of my list for causing stress and upset all round. In the early days of her allergies, and before her autism diagnosis, I thought I was doing the best thing by not making a big deal out of her being different to the other kids. I remember crying inside on her behalf when we arrived at the first-ever school friend party, and it was apparent there was absolutely nothing that she would be able to eat.

I watched her stare longingly at her friends stuffing their faces full of sweets loaded with corn syrup and cheap bread sandwiches. I witnessed the searing disappointment take her over, and knew that a huge meltdown would be on its way the second we got home. Next time around I went armed with back-up supplies to ensure that she wouldn’t have to go through that again.

It didn’t take me long to realise that the food would be a problem almost every time she went to a party, and that I had to figure out a solution to offset the heartache. So over the years I’ve come up with these fail-safe autism/allergy hacks that go some way towards counteracting the inevitable disappointment.

Mummy Tries I contact the host in advance to find out what food they’ll be serving. If it’s a hot meal (such as pizza or nuggets and chips), I prepare a similar allergy-friendly version of the meal for Polly to take with her in a silver foil container. That way she can join her friends when they are eating and not feel too left out. If it will be a standard buffet of sandwiches and sweets, I send her with a bunch of her favourite snacks.

We always arrive at the very start of the party, which means that Polly gets to spend some time with the birthday boy or girl before the other kids arrive en masse, and it gets too hectic. We often leave a little early to avoid the crowds at the end.

Even if most of the other parents are leaving their kids alone at the party, I stay. That way I can keep an eye on Polly, and pull her aside if I can see that she’s getting overwhelmed.

Praise, praise, praise! Throughout the party and afterwards I let her know how proud of her I am, and how well I think she’s doing. This means so much to her, and makes her feel really grown up.

I never expect the host to do anything special for Polly, and am always incredibly touched if they do. We went to a party earlier this year, and the mum knew all about her allergies because she volunteers at her school. The mum had asked me in advance what her favourite snacks were, and when we arrived there was a whole tray of food just for her. To say that Polly was in seventh heaven would’ve been the understatement of the century! The photo above shows just how happy she was.

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MummyTries.com

After surviving a severely dysfunctional upbringing, Reneé is determined to ensure that her own children have a better start to life than the one she had. Last year she wrote her first book. Become the Best You is part memoir, part self-help, and details how she ditched negative influences and behaviour to break the cycle of dysfunction.

Read more from Reneé by visiting her website, Mummy Tries or follow her on Facebook.

My Autistic Sons Are MY Teachers

I always thought that when I became a parent I would spend my days loving my children, helping them to thrive and to progress–helping them to become the best version of themselves they can be. I thought I would have a dual role, as mother and as teacher.

What I have come to realize in the years since Conor was diagnosed with Autism, and more recently again when his younger brother Jack was diagnosed, is that in fact my Autistic sons are MY teachers. I have learned, or should I say re-learned, a lot about life since they were born. They have taught me so much with how they view the world, how they live their lives, how they show love to us and their big sister. They have taught me:

Love Has No Words – Both my boys are non-verbal, yet with a heartfelt look from either I instinctively know how they feel, that they are happy, that they feel love, that they love. You can scream your love from the top of your lungs but that real look of love needs no words: It transcends all barriers.

To Be Kind – neither Conor nor Jack show any malice at all towards anyone or anything. They are always kind. If I drop something, Conor will almost always be the first to pick it up. If I bang into something, Jack will waddle over and rest his tiny head against me as if to say, “It will be okay, mammy.” Conor always shares his toys and sweets with his sister Hailey; he never stops her or baby Jack when they want to have some too. He just smiles and lets them.

Different Is Not Less – They have taught me the real meaning of “different not less.” They are different but no less amazing, lovable, sweet or kind to any other boy their ages. They are different and that is what makes them beautiful.

The Value of Real Friends – Neither of my lovely boys have many friends of their own. It hurts my heart from time to time when I think of them this way. But then they help me realise that the few friends they do have are very “real” friends who adore them just as they are. They remind me that you don’t have to have a million friends to be happy; just a few real friends and I know I am lucky and loved.

Opinions Don’t Matter – Conor and Jack are completely oblivious to anyone’s opinions of them. You can catch Conor busting a move in our local shop when his song comes on the radio; he is just happy to dance and it doesn’t bother him that people stop and stare. He makes me so proud with how brave he is. Jack has no filter for opinions either. He is happy to carry a shoe around with him in his right hand for most of the day, or wear a little cloth on top of his head because it makes him feel happy. He is oblivious to what is considered “normal”–he is his own version of normal. I am so proud of both of my boys and they remind me to always be myself because those that matter won’t mind and those that do mind don’t matter.

Celebrate the Small – In the past I would wait for “big” events in my life to celebrate achievements. The boys have taught me to celebrate the everyday small steps of progress. What many people take for granted in their lives will usually be a massive struggle for my boys to overcome. I always celebrate the achievements, no matter how small, because I know the heartache and persistence it took for my boys to achieve a new goal.

Live a Happy Life – Conor and Jack are their innate selves. They do not know any other way of existing and they are happy just as they are right now. I see them smiling to themselves from time to time; a walk outside in the fresh air can bring them such joy. They make me realise that we should all be happy to be alive! You only get one life; you only get once chance to live your life. Why not make it a happy, positive experience? I have faced a great many challenges since having my lovely boys; I have seen them overcome so much since their births, yet they do not look back. They look forward and are happy to be alive, living a life full of fun, full of hope and, most importantly, full of love.

I am and will always be thankful for my three beautiful children and my very special teachers: They have taught me the real meaning of what Life and Love are all about.x

Baby Jack Conor and Hailey

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Amanda gave up her law career after her first son Conor was born with special needs, later retraining as a Special Needs Assistant so she could help him and her youngest son Jack. Amanda and her family live in Co. Mayo in Ireland. She spends her days now carrying out therapies, preparing visuals for her boys to communicate and doing her best to be a good mom to all of them, including her oldest child Hailey.

Through her writing she helps to provide an insight to what living, loving and raising children in a Special Needs Family can be like for so many people today. To learn more please visit her website littlepuddins.ie or follow her on Facebook at https://www.facebook.com/thelittlepuddinsblog.

Three Simple Words: I’m with Jack

Lana loves her brother Jack. After all, she taught him all about tickling.

She learned from him that autism can be hard and “being different can mean you need a friend even more.

As you can see from this fantastic video that 9 year-old Lana made, Jack may have autism but he isn’t alone. Crank up the volume–this one will leave you smiling.

It Will Be Alright, Mammy

Tears welling in his beautiful eyes, he places his tiny hands on my face, bringing me close to his. With our noses all but touching he gazes; drawing me deeper still, hoping if he looks just deeply enough I will know what his heart aches to say but cannot. At moments like this, my own tears flow easily as his pain washes over me. I wish just then I could go back in time to when I was pregnant with Conor and magic away his special needs, releasing him now from this heartache.

Just shy of 18 months old, Conor was finally diagnosed with Autism, Sensory Processing Disorder, Developmental Delay and related Insomnia. Sitting with Conor on my lap in a small hospital cubicle on a hot, sunny August day, the words melted in slow motion from the paediatrician’s mouth onto the floor. I remember I couldn’t lift my head to look up while she spoke to me; the floor pulled me down to where her words lay. Listening to her explain, Conor smiled up at me as if to say, “It will be alright, Mammy. We all know now.” I finally understood then why my lovely Conor was slipping away before my eyes.

By the time he was diagnosed, Conor had been consistently awake every night since the day he was born, screaming, exhausted. He spent months at a time not eating at all, couldn’t hold a bottle, had only just learned to sit up and couldn’t yet crawl or walk. Eventually he became oblivious to us all; no longer recognising his own name, no longer speaking. He didn’t notice his sister Hailey’s pleas to play with her. He was aloof, body rocking, hand-flapping oblivious. It was Autism. The little boy I had dreamed of had gone.

I felt lost for so long afterwards; I had panic attacks, blackouts with stress. I was so unsure of everything. How could I help my little man? Was it my fault? Maybe I didn’t hug him, kiss him, love him enough; my heart ached with pain. What about Hailey? She missed having Conor to play with and talk to. She asked all the time when Conor would talk—maybe Santa would bring his voice back. I didn’t know how to explain it to her without hurting her heart. One day she waddled over and gave me a squeeze. She looked up with her piercing blue eyes and, in her three-year-old wisdom, said: “It okay, Mammy. Conor here.” She was right; he was still my lovely Conor and still her handsome brother.

AA - Amanda McGuinness Family PHotoI always had a vision of what being a ‘mammy’ entailed, yet Conor has helped me to look far beyond that horizon; to look to the future always. To stay positive even when it seems all but impossible. I have learned to be a new kind of Mammy since having my gorgeous Conor. During the day I carry out Physio, Occupational and Speech Therapy. On nights when Conor can’t sleep at all despite medication, you will find me up watching that he doesn’t hurt himself as he dances and giggles the hours away.

Lately, I see how it plays on Hailey’s mind more than ever, asking when he will talk. She can’t wait to finally have someone to talk to. At the same time, I watch her with Conor. She’s always the first to take his hand, to protect him, to say “Good boy, Conor” when he masters a skill most of us take for granted. She is his biggest fan, and has a heart filled with optimism and empathy. Recently, when someone was laughing that her brother couldn’t talk despite being five, she asked the boy: “How would he like to be 5 and not be able to talk?” She said later that little tears came out but she pushed them back in. My heart broke with pain, yet with pride that she is the next generation we are raising who will protect and look out for the many vulnerable people in our world.

I am thankful every day for Hailey, Conor and their baby brother Jack. Collectively they have helped me see what matters most in life: the sleeping faces I kiss good night, the squeezes little arms can give each day and—please God, someday—the words my little ones will say.

I love you Hailey, Conor and Jack. x

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Amanda gave up her law career after her first son Conor was born with special needs, later retraining as a Special Needs Assistant so she could help him and her youngest son Jack. Amanda and her family live in Co. Mayo in Ireland. She spends her days now carrying out therapies, preparing visuals for her boys to communicate and doing her best to be a good mom to all of them, including her oldest child Hailey.

Through her writing she helps to provide an insight to what living, loving and raising children in a Special Needs Family can be like for so many today. To learn more please visit her website  littlepuddins.ie or follow her on Facebook at https://www.facebook.com/thelittlepuddinsblog